The Foundation
We believe…
… that every human being should have access to the information, care and treatment they need to keep their heart healthy, regardless of race, nationality, gender, age, education or income.

Our Vision
To provide support, education and advocacy for individuals and families with FH.

Our Purpose
To build Australia-wide awareness, understanding and access to diagnosis and treatments for individuals and families with FH.

The Story
Familial Hypercholesterolaemia
Familial Hypercholesterolaemia (FH) is a genetic disorder that affects approximately 1 in 250 people. If undiagnosed and untreated at an early age, FH increases the likelihood of having premature coronary heart disease (CHD) due to increased blood levels of bad (low-density lipoprotein) cholesterol and build-up of plaque in the coronary arteries.
If untreated, the cholesterol burden builds throughout life and up to half of all people living with FH may experience a coronary event (heart attack or stroke) by the age of 50 for men or 60 for women. Early diagnosis and treatment reduces CHD risk and can return affected patients to a normal life expectancy.
It is estimated that only 10% of Australians living with FH have been diagnosed. FH Australia is dedicated to improving national awareness and understanding of Familial Hypercholesterolemia, by supporting best practice and timely access to diagnosis and treatments, by encouraging education and knowledge for health professionals, and by acting as the voice for individuals, families and consumers seeking to navigate the Australian health care system to advocate for their health needs.
The Story
Lipoprotein(a) – Lp(a)
Lipoprotein(a), or Lp(a), is a type of lipoprotein similar to LDL (“bad” cholesterol) and, if elevated, is considered an independent risk factor for cardiovascular disease (CVD). Like LDL, elevated Lp(a) can contribute to the buildup of plaque in the arteries — a process known as atherosclerosis. Over time, this narrowing of the arteries can increase the risk of heart attacks and strokes.
Key facts about Lp(a):
- Genetic & Inherited: Elevated Lp(a) is primarily determined by genetics. If you have high levels, there’s a 50% chance that your first-degree relatives (parents, siblings, children) will as well.
- Prevalence: Approximately 1 in 5 people have elevated Lp(a) levels, but the majority are unaware, as it’s not part of routine lipid testing.
- Consistent Over Time: Unlike LDL cholesterol, which can fluctuate with lifestyle and medications, Lp(a) levels are relatively stable throughout life.
- Common in Familial Hypercholesterolemia (FH): It’s especially important to check Lp(a) levels in people with familial hypercholesterolemia, as having both conditions compounds the risk of premature cardiovascular disease.

Did you know…
Only 10% of Australians living with FH are diagnosed and 1 in 250 people are affected
and the impact is…
Reduced life expectancy in both women and men
but the good news is…
Effective treatments and specialist services are available
Keeping You Informed
News & Media
Latest news and media on Familial Hypercholesterolaemia.
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Understanding the Lipid Panel
Read More: Understanding the Lipid PanelA lipid panel, or lipid profile, is a blood test that measures the amount of fat molecules called…
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Inherited Cholesterol and Heart Scans
Read More: Inherited Cholesterol and Heart ScansInherited conditions such as familial hypercholesterolaemia (FH) or high lipoprotein(a) [Lp(a)] can increase the risk of coronary heart…




