FH Australia endeavours to stay current with literature, guidelines and emerging therapies relevant to inherited high cholesterols. We have a growing collection of curated resources to help inform and educate our members and the wider public.
Guidelines
- Australian FH guideline 2021
- Australian FH paediatric guideline 2022
- International FH guideline 2023
- Australian Lp(a) guideline 2023
Tools
- Understand your pathology tests – detailed information about pathology to help you manage your health.
- Heart Healthy Eating – excellent information from the Heart Foundation about how to eat well for a healthy heart. There are plenty of resources, recipes, and ideas.
Articles of Interest
- A new article published in MJA InSight described the urgent need for proactive FH genetic testing, particularly in children, and highlights how early diagnosis and cascade testing within families can prevent unnecessary loss of life. With proven international models and robust clinical evidence, Australia now faces a critical opportunity to implement strategies that enable early identification and treatment of FH. Read the full story and learn how we can reduce preventable heart disease through smarter, earlier action.
https://insightplus.mja.com.au/2025/9/do-some-children-need-statins/ - Genetic testing for FH is covered by Medicare meaning that those with Medicare cards are able to get free testing when ordered by their doctor. Genetic testing is especially helpful for ‘cascade testing’ in family members. Cascade testing is when family members (parents, children, siblings, aunts, uncles, cousins) of someone with a genetic diagnosis of FH test for the same gene variant. Cascade testing can help relatives find out their heart disease risk early, before it’s too late to prevent damage. We hope that sharing articles like this can help increase awareness of FH and the GP’s key role in caring for families with FH.
Medicine Today July 2021
Podcasts
Videos
- The Family Heart Foundation recently presented new findings on lipoprotein(a) [Lp(a)] and its connection to cardiovascular disease (CVD) risk at the American Heart Association (AHA) Scientific Sessions in Chicago, IL. This large analysis of Lp(a) data shares critical insights into the impact of Lp(a) on cardiovascular health.
Watch the video here. - A very informative presentation from senior dieticians at Perth Children’s Hospital for families living with FH. Watch the video here.
- Lp(a) patient experience story with Chris Daws. Watch the video here: Long version (6′ 11”) / Short version (2′ 24″)
Downloads
Posters
Flyers
