Author: Christine Tawtel (Hendricks)
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Free Heart Health Snapshot Review
Read More: Free Heart Health Snapshot ReviewVisit our pop-up stalls in Perth and Sydney this FH Awareness Week for a free heart health snapshot, quick cholesterol test and have your cholesterol questions, including family history of high cholesterol answered. Perth Tuesday 23 – 9am – 12pmFiona Stanley Hospital Wednesday 24 – 9am-12pm St John of God Midland Thursday 25 – 8am –…
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Why does FH need a patient advocacy organisation?
Read More: Why does FH need a patient advocacy organisation?The power of patient advocacy is essential in improving health care navigation, patient-clinician dialogue, and the wider patient experience. In the inherited (genetic) high cholesterol space, there is a gap in awareness and understanding of FH with the general public, most levels of health care, and with policymakers resulting in 90% of affected individuals remaining…
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How to self-advocate with your GP
Read More: How to self-advocate with your GPSelf-advocating with your GP or other health provider can be challenging but incredibly rewarding, allowing you control over your healthcare. Here are some strategies to help you effectively communicate and advocate for yourself ensuring you receive optimal FH medical care: Understand Your Condition Before your appointment, take the time to thoroughly understand Familial Hypercholesterolaemia (FH)…
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FHA joins the Global Heart Hub alliance
Read More: FHA joins the Global Heart Hub allianceFH Australia is pleased to join the Global Heart Hub alliance of heart-focused patient organisations. Our respective missions are aligned to advocate on behalf of our patient community for the best possible outcomes and seek innovative and best practice interventions and solutions; and to be included as an equal stakeholder in healthcare strategy. Read more…
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Genetic Discrimination in Life Insurance is ENDING
Read More: Genetic Discrimination in Life Insurance is ENDINGBack in May, FH Australia posted about our putting our patient voice behind the national advocacy efforts encouraging government to legislate a total ban on the use of genetic results in life insurance underwriting. Advocates have campaigned for almost a decade for this change; so it was with considerable satisfaction and relief that in September…
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One Son’s Story
Read More: One Son’s StoryI was in my 50’s when I found out my dad had actually died of a heart attack in his early 60’s. Given my family history, my GP suggested we should check my cholesterol. The result from that test shocked me. I felt healthy and fit and yet I still had a cholesterol level that…
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Jane’s Story
Read More: Jane’s StoryI was seven years old when my dad had his first heart attack. At just 37 years old it was very young for someone who had a healthy lifestyle to suffer a major heart attack. My dad’s event made our family aware of high cholesterol however we were never informed coronary vascular disease at a…
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24 Sept – free lecture on cholesterol and heart health
Read More: 24 Sept – free lecture on cholesterol and heart healthIn support of FH Awareness Day, don’t miss this opportunity to hear from Fiona Stanley Hospital cardiologist, Dr Nick Lan, as he talks about how cholesterol affects your heart and what you can do to keep your heart in tip-top shape. Nick is also a Clinical Senior Lecturer at The University of Western Australia and…
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Xi’s Story
Read More: Xi’s StoryMy FH journey began about 10 years ago in my late twenties when one of my health professionals suggested a cholesterol panel as part of a wellbeing check. My results indicated that my Total Cholesterol was over 10 and my LDL Cholesterol above 7. My GP reviewed my results and gave me a factsheet about…
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Jacqui’s Story
Read More: Jacqui’s StoryHigh cholesterol has been in our family for generations. My Nana had a heart attack at 46, her brother died at 42, my dad has always had elevated cholesterol and my Aunty has high cholesterol too. There was something going on in our family, but we had no idea what. My dad tried for years…