Has your child been diagnosed with Familial Hypercholesterolaemia (FH)?

If so, we’d love to hear from you 👇

Researchers from UNSW Sydney are seeking parents and caregivers to share their experiences and perspectives on:
🧪 Possible changes to Australia’s newborn screening programs
🤝 The best ways to support parents and families

Am I eligible?
You can take part if you are a parent/caregiver of a child under 18 diagnosed with FH 👶

What’s involved?
📞 A 30–45 minute telephone or video interview covering:
• Your experience with your child’s FH diagnosis
• The support you received (or needed)
• Your views on future FH screening and its impact on families

🌏 Interviews can be conducted in a language other than English if preferred

Interested in participating?
📧 Email: neoscreen@unsw.edu.au
🔗 Or sign up here: https://redcap.link/7r13w3p6

✅ Approved by UNSW Human Research Ethics Committee (HREC)
(iRECS10128 | Version 2 | 19 November 2025)

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